The Library:
If you are aware of a resource or link that will be of benefit to the membership or others who visit this site – please send it to Mike Mayer - mikemayer@theashevillecoalition.org
The Center for Self Determination
CRA Conferences
National Health Law Program
Scott Ryder & Mark Vincent: northernhs.org
Mary & Lyle Romer: totallivingconcept.org
Jacquie & Bruce Blane: Independent Living
Kim Turner: optionsmadison.com
Pat Fratangelo: oclinc.org
Jeff Strully: jaynolan.org
Michael Lundquist: poluscenter.org
| News |
| Tough Times are no Reason to Abandon People with Disabilities As the relatively new director of a legal advocacy group for people with disabilities, I don't pretend to be an expert in North Carolina politics. I've been told that could take years - especially when it comes to the development of the state budget. What I do understand is political process. And I understand the role of the organization I direct, Disability Rights North Carolina (DRNC), in that process. Our mission is to protect the rights and articulate the needs of people with disabilities. To do that according to North Carolina law, we have to be registered lobbyists. And, in a sense, we represent a "special interest." Our positions are shaped by our mandate to protect the rights of people with disabilities and to advocate for their need to receive services in a safe and therapeutic manner in environments of their choice. |
| Harkin, Davis Set to Introduce ADAPT's Community Choice Act on March 24 |
5 Star Quality Information |
| January 2009 edition of the Journal of Vocational Rehabilitation Click Here for Document The January 2009 edition of the Journal of Vocational Rehabilitation focuses on social capital and its impact on vocational rehabilitation and community. Social capital (our relationships) is critical to health and happiness, but there has been very little in the disability field that has looked closely at this concept and the potential to strategically use social capital principles. |
MASS. ANNOUNCES MORE COMMUNITY LIVING OPTIONS FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES "Community First" Agenda includes closure of four developmental centers over four years. |
| Transformation of Services in Ohio How Ohio changed it's residential services to a prevalence of supported living over the past twenty years and ranks as one of the top four states in the nation. Click Here for Document |
| Durham Nursing Home Closes After State Investigation Lisa Sorg, Mat Saldana - Indy Week.Com - December 31, 2008 In the official investigation reports, to protect their privacy they are referred to only by number: Resident No. 2, No. 6, No. 8 and so on. But they are people, once patients at Forest View Rehabilitation Center in Durham. They are people who were not given even Tylenol to alleviate the pain from deep, penetrating bed sores. They are people sexually assaulted by fellow patients. They are people who, unsupervised by nursing home staff, repeatedly fell; another person was bitten by fire ants. They are people who contracted urinary tract infections from dirty catheters—at least one of which was washed with the same cloth used to wipe feces from a person’s rectum. Forest View Rehabilitation Center, a 138-bed, for-profit nursing home on Mt Sinai Road near the Durham/ Orange county line, quietly closed last month. The 100 or so residents, which included the elderly, sick and those with mental and physical disabilities ranging from multiple sclerosis to kidney failure to Alzheimer’s, were transferred to other facilities. (For additional details and the complete article go to Durham Nursing Home Closes. |
January 2009 edition of the Journal of Vocational Rehabilitation |
Individualized Funding Models |
| 2011 Alliance for Full Participation Meeting http://www.craconferences.com/resources/cra/2011 Alliance for Full Participation Meeting.pdf |
"The Case for Inclusion: 2008." This report ranks all 50 states and the District of Columbia on how well they are providing community supports to Americans with intellectual and developmental disabilities being served by Medicaid. North Carolina's ranking in this study is 35th in the United States. See |
Job Creation, Save Substantial Medicaid Funds, and Do What Disabled and Elderly Want. Information Bulletin #267 (11/08) |
States Cut Services for Elderly: |
| Nursing Home Emancipation Barriers: http://www.theashevillecoalition.org/documents/Nursing_Home_Emancipation_Barriers.pdf In 1999, the U.S. Supreme Court affirmed the right of individuals with disabilities to receive services in "...the most integrated setting." Since then, Centers for Independent Living (CILs) and other disability advocacy organizations have worked to transition adults with disabilities from inappropriate nursing home placements to community living. |
Community for All" Tool Kit: Resources for Supporting Community Living |
FEATURES Hidden Talent: http://www.govexec.com/features/1008-01/1008-01s3.htm |
The Community Imperative: http://thechp.syr.edu/community_imperative.htm |
| HHS Announces $36 Million to Help Older Americans and Veterans Remain Independent: http://www.dhhs.gov/news/press/2008pres/09/20080929a.html The U.S. Department of Health and Human Services (HHS) today announced $36 million in new grant programs to 28 states to help older Americans and veterans remain independent and to support people with Alzheimer’s disease to remain in their homes and communities. Just over $19 million of this funding involves a new collaboration with the U.S. Department of Veterans Affairs (VA). |
2007 Institution vs Community: http://www.theashevillecoalition.org/documents/2007_Institution_vs_Community.pdf |
| AARP Rebalancing Report: http://assets.aarp.org/rgcenter/il/2008_10_ltc.pdf This report examines the extent to which states have balanced the delivery of Medicaid-funded long-term services and supports to people in their homes and similar settings in their communities as opposed to institutions. The paper also looks at what can be done under current Medicaid law and federal policy impact on these services. |
| Alliance for Full Participation: http://www.allianceforfullparticipation.org/public/ In September 2005, over 2,400 Americans who live with lifelong disabilities, their family members, and the people who work along side of them came together in Washington, DC, to participate in a ground-breaking Summit.... |
| Housing & Disability Issues: (formerly NHOYO) is a moderated informational list. It consists of disability issues concerning, but not limited to: Individuals, Home ownership, and Affordable housing. If you would like to be on our mailing list, send an email message to: HOUSING.DISABILITY.ISSUES-request@lists.unh.edu Online Recording of NLIHC Explanation of Housing Trust Fund Available Click Here to listen to the call. |
| Facilitators |
Dennis Harkins: http://dwharks.googlepages.com/home
Michael Kendrick: kendrickconsulting.org
Michael Mayer: Community Resource Alliance
| Documents |
Moving From Traditional to |
| DD Summit Recommendations – North Carolina |
| Best Practices for Implementing the Recommendations of “Looking Forward: A Summit on the Developmental Disabilities System in North Carolina” |
| New Hampshire Individual Career Accounts |
| Vermont Support Work Innovations |
| NC DMA: Money Follows the Person Project |
| CLS Story |
| 3-1-08 Housing 400 Initiative Progress Report |
| 3-1-08 Iterim Plan for Efficient and Effective Use of State Resources |
| Person Centered Organizations Four long-term service providers have been chosen by the N.C. Department of Health and Human Services to pilot new approaches for providing services and supports to people in North Carolina with disabilities or who are aging. |
| Presentations & Handouts |
| Implementation of Self-Determination in the Real World: A Provider Experience by Jim Dehem as presented at the First International Conference on Diverse Abilities and Service Innovations, August 2008. |
| Articles |
| Story Link -- Prom king with Down syndrome goes to college - CNN.com |
| Fla. Medicaid recipients want out of nursing homes By MATT SEDENSKY PLANT CITY, Fla. -- Charles Todd Lee spent a lifetime going backstage at concerts, following politicians on the campaign trail and capturing iconic shots of everyone from Martin Luther King Jr. to Mick Jagger to Mickey Mantle. Today, he enjoys such freedom only in his dreams…. |
| Conferences |
| 2008 Global Forum for Inclusion: Click here for the conference program |
| Links |
| The HCBS Quality Learning Community For those working with Home and Community Based Waiver Services |
| Clearinghouse for Community Living Exchange Collaboration |
| The Community Imperative http://thechp.syr.edu/community_imperative.htm |
| The Center on Human Policy http://chance.unh.edu/ |
| The Center for Housing and New Community Economics (CHANCE) http://chance.unh.edu/ The Center for Housing and New Community Economics (CHANCE) was established in March of 2001. CHANCE's mission is to improve and increase access to integrated, affordable, and accessible housing coordinated with, but separate from, personal assistance and supportive services. |
| Advocacy for deinstitutionalization: http://www.stevegoldada.com Direct Support Professionals: |